Should patients or their families be told of the risk of Sudden Unexplained Death in Epilepsy?

Brodie MJ and Ben-Menachem E. Should patients or their families be told of the risk of Sudden Unexplained Death in Epilepsy?

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Context

Online transcript of dialogue between two physicians who disagree on the appropriateness of informing patients about SUDEP early in the course of treatment. One of these physicians followed up with an article to advocate his belief that patients should be told early Brodie and Holmes. The interesting suggestion is presented of training service animals (e.g., dogs) to detect cessation of respiration during seizure and rouse the patient.