Difference between revisions of "Welcome"

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*van Andel J, Thijs RD, de Weerd Am, et al. (2016): [[Non-EEG based ambulatory seizure detection designed for home use: What is available and how will it influence epilepsy care?]]
 
*Van Buren JM (1958): [[Some autonomic concomitants of ictal automatism; A study of temporal lobe attack]]
 
*Van Buren JM (1958): [[Some autonomic concomitants of ictal automatism; A study of temporal lobe attack]]
 
*Van Buren JM (1961): [[Sensory, motor and autonomic effects of mesial temporal stimulation in man]]
 
*Van Buren JM (1961): [[Sensory, motor and autonomic effects of mesial temporal stimulation in man]]
 
*Van Buren JM and Ajmone-Marsan C (1960): [[A correlation of autonomic and EEG components in temporal lobe epilepsy]]
 
*Van Buren JM and Ajmone-Marsan C (1960): [[A correlation of autonomic and EEG components in temporal lobe epilepsy]]
 
*van Rijckevorsel K, Saussu F, and de Barsy T (1995); [[Bradycardia, an epileptic ictal manifestation]]
 
*van Rijckevorsel K, Saussu F, and de Barsy T (1995); [[Bradycardia, an epileptic ictal manifestation]]
*vanLandingham KE and Dixon RM (2007): [[Lamotrigine in idiopathic epilepsy – Increased risk of cardiac death]]
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*van Landingham KE and Dixon RM (2007): [[Lamotrigine in idiopathic epilepsy – Increased risk of cardiac death]]
 
*Velez M, Fisher RS, Bartlett V, Le S (2016): [[Tracking generalized tonic-clonic seizures with a wrist accelerometer linked to an online database]]
 
*Velez M, Fisher RS, Bartlett V, Le S (2016): [[Tracking generalized tonic-clonic seizures with a wrist accelerometer linked to an online database]]
 
*Venit EL, Shepard BD, and Seyfried TN (2004): [[Oxygenation prevents sudden death in seizure-prone mice]]
 
*Venit EL, Shepard BD, and Seyfried TN (2004): [[Oxygenation prevents sudden death in seizure-prone mice]]

Revision as of 13:26, 28 June 2018


An increased risk of sudden death has been reported in patients with epilepsy since the late 1800s, and possibly much earlier (DeToledo et al., 1999; Doherty, 2004). Since the 1990s sudden unexpected (or unexplained) death in epilepsy (SUDEP) has received increasing attention and been recognized as more widespread than previously believed. Despite the increase in awareness, “systematic well funded research remains limited. The medical literature contains much repetition, with effort spent on re-analysing data with substantial methodological limitations,” (Tomson et al., 2008). There is a need for better clinical and basic science studies and improved epidemiological data, and there is also a need for increased knowledge of the findings already obtained, and how they interrelate.

This wiki exists to harness the collective knowledge of the worldwide SUDEP research community in the hope of focusing and accelerating the effort to better understand and more effectively prevent SUDEP. A massive literature on sudden death in epilepsy and closely related phenomena exists, with many studies having considerable overlap. Many isolated case reports have been published, and considering them collectively increases their informative power. Users of this tool can add entries for articles including links to the articles themselves, contribute to the discussion of articles, add links to the entries on related articles, or post comments. Comparing and contrasting research findings in this way can highlight where open questions exist and potentially target future investigation more effectively. The ultimate aim is better mechanistic insight into the process, which has the potential to reduce SUDEP deaths.

Articles (organized by first author)

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